Rett Syndrome Study
Telethon Institute for Child Health Research: Australian Rett Syndrome Study (funded by the National Institutes of Health)
Explore | The direct and indirect costs of Rett Syndrome in Australia, using a national database of every known case. This included regular and acute medication, hospital procedures, health professional visits, therapy, respite and long term care, nondurable medical products and durable medical equipment.
Uncover | The economic impact of Rett Syndrome on families, the community and government.
Drive Change | The results of this analysis will be published in several journal articles, and will be used to support government submissions.
Services performed | Data cleaning, database development, matching Rett data to published figures for PBS medication, hospital procedures and health professional consultation rates, adjusting monetary figures to the 2005 Consumer Price Index, written document outlining assumptions and methods used in calculating specific costs, health economics analysis of costs, calculating specific costs required for article publication.









